Charlie Has Cranial Synostosis

Charlie has a condition known as cranial synostosis. Simply put, his saggital suture (top of the skull) has fused prematurely. This causes his head to grow abnormally as you can see from the pictures. At some point, he will need surgery to open the suture so that his brain has room to grow. Having this condition also causes pressure on his optical orbits, which in turn, causes his eyes to have a "bugging out" appearance. The good news is that the cranial synostosis is the least of our worries where Charlie is concerned. We have complete confidence in his neurosurgeon and neonatologists and once he is bigger and stronger, he will have surgery to correct it.